This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Black Women's Health Imperative
International. 15 chapters. Founded 1981. Grassroots organization aimed at improving the health of black women by providing wellness education, services, self-help group development, leadership development, health information and advocacy. Assists in the development of new local affiliate groups. Self-help brochure, quarterly newsletter and annual news magazine. Membership dues vary. Write: Black Women's Health Imperative 1726 M Street NW, Suite 300 Washington, DC 20036 Voice: 202-548-4000 Fax: 202-543-9743 Website: http://www.blackwomenshealth.org E-mail: info@blackwomenshealth.org Verified: 01/26/2011
Cyster Connection
Online. 531 members. Support for women with polycystic ovarian syndrome (PCOS), a condition in which ovaries create an abundance of follicles each month without producing an egg. PCOS usually goes hand-in-hand with insulin resistance. It is also the most common cause of infertility among women in the United States. Website: http://pcostcc.proboards83.com Verified: 03/29/2011
International Premature Ovarian Failure Association, Inc.
International network. Founded 1995. Peer-to-peer support for women who have premature ovarian failure, premature/primary ovarian insufficiency, and premature menopause. Phone support, literature, information and referrals and local support groups. Write: IPOFA P.O. Box 23643 Alexandria, VA 22034 Voice: 703-913-4787 Website: http://www.ipofa.org Verified: 01/13/2011
Power Surge
Online. Provides support and information for women going through menopause. Online interactive chats, message boards, newsletters and weekly gab sessions. Some pages require Flash. Website: http://power-surge.com Verified: 03/29/2011
iVillage Health Message Boards
Online. Provides various message boards concerning all aspects of health, including menopause, breast cancer, addictions, allergies, arthritis, heart, immune disorders, vision, disabilities, diabetes, caregivers, brain disorders, infertility, respiratory, mental health, pain, parenting, thyroid and medications. Mailing lists, message boards, chats and newsletters. Website: http://www.ivillage.com/boards Verified: 03/29/2011
Mullerian Anomalies of the Uterus
Online. 3600+ members. Founded 2000. Support and information for those with Mullerian anomalies of the uterus such as bicornuate, septate, unicornauate, hypoplastic and didelphys uteria. Weekly chat, e-mail list and message board. Website: http://health.groups.yahoo.comgroup/mulleriananomalies Verified: 03/29/2011
DES Action
National. Founded 1983. Mutual support and education for DES-exposed women, with a special focus on DES cancer issues. Provides research, advocacy and medical/legal resources. Write: DES Action 2925 Garber St. Berkeley, CA 94705 Voice: 1-800-337-9288 Website: http://descancer.org E-mail: desaction@columbus.rr.com Verified: 01/13/2011
Saline Support
Online. 2200+ members. Founded 2000. For women who have experienced health problems related to having saline or silicone gel breast implants. Discussion of emotional struggles and effective health therapies. Website: http://groups.yahoo.com/group/salinesupport Verified: 03/29/2011
Breast Implant Support Forum
Online. 3250+ members. Support forum created to help women who have become ill from having saline or silicone implants. Provides information, support, information on explants (removal of implants) and detoxing after removal. Website: http://www.breastimplantsupport.org/forums Verified: 03/29/2011
Women Heart
Online. Support for women with heart disease, their family and friends. Website: http://www.womenheart.org/supportforwomen/community/cfm E-mail: mail@womenheart.org Verified: 02/23/2011
Mautner Project, the National Lesbian Health Organization
Model. Several groups in Washington, DC. Founded 1990. Cancer support and survivorship groups for lesbian, bisexual and transgender women who partner with women (WPWs), their partners and caregivers. Bereavement support groups for WPWs who have lost a partner, friend or loved one. Smoking cessation groups for the lesbian, gay, bisexual and transgender community. Health self-empowerment groups for black WPWs. Provides phone and online support to WPWs outside the DC-Metro area. Provides LGBT cultural competency training to health care professionals and their staff members. Information and referrals, phone support, literature, newsletter and advocacy. Write: Mautner Project 1875 Connecticut Ave. NW, Suite 710 Washington, DC 20009 Voice: 1-866-628-8637 or 202-332-5536 (Mon.-Fri., 9am-5:30pm EST) Fax: 202-332-0662 TDD: 202-332-5536 Website: http://www.mautnerproject.org E-mail: info@mautnerproject.org Verified: 01/26/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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Seton is proud to have four hospitals – the only hospitals in Central Texas - that have earned the Magnet designation, the highest award for nursing excellence given by the American Nurses Association.