This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National Urea Cycle Disorders Foundation
National network. Founded 1989. Links families, friends and professionals who are dedicated to the identification, treatment and cure of urea cycle disorders, which are genetic disorders causing an enzyme deficiency in the urea cycle. Supports research, educates medical professionals, affected patients and families and the public. Provides information, referrals and networks families together for support. Phone and online support, literature and newsletter. Write: National Urea Cycle Disorders Fdn. 75 South Grand Ave. Pasadena, CA 91105 Voice: 626-578-0833 or 1-800-386-8233 Fax: 626-578-0823 Website: http://www.nucdf.org E-mail: cureucd@nucdf.org Verified: 8/25/2011
TRUE Kids
(Transplanted to Resolve Ure-cycle Enzyme-deficiency) Online. Mutual support and information for families of transplanted children with urea cycle disorder. Website: http://www.true-kids.org Verified: 9/26/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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