This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Alpha-1 Association
International. 54 affiliated groups. Founded 1988. Support, advocacy and information for persons with alpha-1 antitrypsin deficiency and their families. Networking of members through newsletter and support groups across the country. Sharing of current information on treatments and research. Newsletter, group development guidelines, educational materials and advocacy information. Write: Alpha 1 Association 2937 SW 27th Ave., Suite 106 Miami, FL 33133 Voice: 1-800-521-3025 or 305-648-0088 Fax: 305-648-0089 Website: http://www.alpha1.org E-mail: info@alpha1.org Verified: 1/26/2011
American Lung Association
(BILINGUAL) National. Founded 1904. Refers callers to regional resources for information on lung health, smoking and environment. Local chapters can provide referrals to support groups for persons with chronic lung disorders such as emphysema, chronic bronchitis, asthma, pulmonary problems, etc. These groups use names such as 'Easy Breathers' or 'Family Asthma Support Group.' Write: American Lung Association 1301 Pennsylvania Ave. NW Suite 800 Washington, DC 20004 Voice: 1-800-548-8252 Website: http://www.lungusa.org Verified: 1/26/2011
Asthma and Allergy Foundation of America
National. 100+ affiliated groups and 9 chapters. Founded 1953. Serves persons with asthma and allergic diseases through advocacy, the support of research, patient and public education. Newsletter and support/education groups. Assistance in starting and maintaining groups. Books, videos and other educational resources. Write: Asthma and Allergy Foundation 8201 Corporate Dr., Ste 1000 Landover, MD 20785 Voice: 1-800-727-8462 (Mon.-Fri., 10am-3pm EST) Website: http://www.aafa.org E-mail: info@aafa.org Verified: 1/27/2011
COPD-Support, Inc.
Online. Provides a variety of online support programs for chronic obstructive pulmonary disease patients, caregivers and interested medical personnel. Programs include: moderated mailing lists, forums, chats, a weekly newsletter 'COPD-Watch' for those living alone, 'Smoke No More' for help in quitting smoking and 'Let's Get Fit' exercise program. Website: http://copd-support.com Verified: 9/20/2011
Coalition for Pulmonary Fibrosis
National. 55 affiliated groups. 25,000 members. Founded 2001. Information, resources, educational materials and support for patients with pulmonary fibrosis. Write: Coalition for Pulmonary Fibrosis 10866 W. Washington Blvd, Ste 343 Culver City, CA 90232-95118 Voice: 1-888-222-8541 Website: http://www.coalitionforpf.org E-mail: info@coalitionforpf.org Verified: 9/2/2011
Huff-n-Puff
Online. 1000+ members. Provides support for people with any type of interstitial lung disease (including pulmonary fibrosis). Opportunity to meet others with similar conditions, experiences and knowledge. Website: http://www.huff-n-puff.net Verified: 9/20/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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