This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National MPS Society
National. Founded 1974. Provides support and hope for individuals with mucopolysaccharidoses or mucolipidoses and their families through research, advocacy, public education and parent referral service for support networking. Write: National MPS Society P.O. Box 14686 Durham, NC 27709 Voice: 919-806-0101 or 1-877-677-1001 Website: http://www.mpssociety.org E-mail: info@mpssociety.org Verified: 8/22/2011
The International Morquio Support Group
International network. Founded 1999. Provides support and education for families of children with Morquio Type A. Helps educate health care professionals about this lysosomal storage disease. Funds research. Maintains database of families. Referrals to physicians and medical information, pen pals, phone support, conferences and newsletter, online guestbook and helpful links. Write: Morquio Support Group 8164 W. Circulo DeLos Morteros Tucson, AZ 85743 Voice: 520-744-2531 Fax: 520-744-2535 Website: http://www.morquio.com E-mail: mbs85705@yahoo.com Verified: 1/27/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org
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