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International. Founded 1983. Purpose is to foster communication among families, promote a better understanding of the syndrome, provide medical and educational information, sponsor biennial International conferences, encouragement, financial support, clinical and medical research. Parents, family, friends, professionals and others who are interested in Lowe syndrome are welcome. Dues $15 (can be waived if parents are in need).
Lowe Syndrome Association
P.O. Box 864346
Plano, TX 75086-4346
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