|This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.|
Online. Founded 1990. Mutual support for families caring for a child who has congenital central hypoventilation syndrome. Provides online discussion board for families and patients, physician directory, equipment information, moderated online mutual help activities, and other information. Facilitates and supports CCHS research. Holds family educational conferences every three years - see website for news on conferences. Family directory for CCHS families in the USA and around the world available to families via website.
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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